Saturday, July 25, 2009
It’s about 1:30pm and I’m sitting in the dining room of Sarah Du’s aunt (Holly) and uncle’s (Attie) house. It’s an adorable, tiny house with two floors, two bedrooms one-and-a-half baths, and it’s just so cute. It’s ridiculously clean, nothing like my house will ever be, but it is really nice. The shower is out of this world. I cannot believe the heaven that is that shower. Insanity. I’ve taken two showers so far, and hope to take at least one more. Yes, a heavenly shower.
This morning I got up at 5:30am and went with Sarah, Holly, and Attie to Stillwater, MN to do some racing (Attie ran the 10 mile, Holly ran the 5k, and Sarah and I walked 4.2k of the 5k and jogged the last .8k) and then went to the Stihl World Championship of Dogs and Logs. Holly sponsored Sarah and me for the race at $30 a person. I want to send her flowers.
The 5k was really nice, very beautiful, and Sarah and I had a ton of fun cutting up and not taking the race seriously at all. I think Attie was running the 10 mile because he’s running in a marathon either next weekend or the weekend after that. The Twin Cities Marathon, I think. But yeah. We got there at about 6:45am and went to register and get everything blah blah blah. My number was 2250, and we also got a cool little chip to wear on our shoe to identify us as part of the race. Woot. After we registered we still had quite a bit of time and so Holly and Attie went to get some tea/coffee from a little cafĂ© thing that was making the buck from all the runners and their friends and family. We then caught a bus up to the starting line, where we sat in the cold chilliness of the morning for a long, long time. No cute guys anywhere. Several members of a cross country team, though. They all look so young, but they’re probably just in high school – I felt so old. There was also a bridal party there – what torture. The wedding is actually today, and I wonder at the sanity with which the decision to get up at 5:30 in the morning and run was made.
Throughout the race we took lots of photos and just had a great time. Holly finished in about 35 minutes, and Sarah and I jogged in at just under 50 minutes. We were laughing as we crossed the finish line, and so I didn’t care at all about the time. Attie came in at about 1 hour 15 minutes (I think) – insanity – so hardcore. After the race, Sarah, Holly, and I waited for Attie at the finish line and I took some creeper shots of very attractive male runners coming in from the 10 miler. Nice. When Attie came in we were very happy (Holly was worried because Attie was taking so long). When he finally made it in he looked like he had only done about a 5k at a good pace – so impressed – thoroughly intimidated. Haha. We all went to the line of delicious fruit (bananas and oranges) and bagels (got a cinnamon raisin bagel) and chips (didn’t get any) and then went and got our t-shirts. Nice! We then split up and while Holly and Attie went for some food, Sarah and I went for some Dogs and Logs.
Dogs and Logs is basically lumberjacks doin’ their thang and dogs doin’ their thang. It was a lot of fun watching the dogs, but not so much fun watching the lumberjacks. They were filming it in the hopes that ESPN would pick it up, but I don’t know if ESPN was actually there or not. If I couldn’t tell they were there, they probably weren’t. But it was a huge production, really nice equipment, huge setup, and lots of people. The dogs were incredible! I took lots of photos and videos, and completely wore out my camera’s battery (the new one I got in the mail with the new charger! So excited that I finally have a camera!). I really wanted to buy Billy a $15 t-shirt touting the event, but I resisted. Got to pet a couple of adorable dogs, ate some fried cheese curds, used a porter potty that was actually insanely clean (probably because I was the first person to actually use it) and amazing because there was hand sanitizer inside, took pictures, and tried to find as much free stuff as possible. I restrained Sarah from going over to the Go Army and National Guard tents – she wanted the free stuff and to climb the rock wall thingy that the National Guard people had set up.
We met Holly and Attie at noon at the car and drove back. I stayed awake for the most part, but Sarah passed out and her aunt kept looking back and chuckling to herself and talking to Attie in a language that I have no idea. Maybe French? Dutch? Some language from South Africa? I dunno. Anywayz …
Just talked to Billy on the phone for a while, and it was nice. He is very much looking forward to the little vacation with Mom out in Santa Fe. I really hope that he can enjoy himself and not just worry about the depositions he’s been taking for the case involving the overzealous, extremely over reactive, crazy liability restraint case of a tiny kid on a cement floor by several big strong full-grown men. Yesterday while I was sitting in the grass waiting for everyone to gather so that we could leave, we talked about everything that I have learned and everything that is so crucial to understand and all the mistakes that are made simply because of a lack of communication. But another thing that I have learned while at camp is that communication only works if specific parameters are met, and that’s not always a guarantee that you’ll get them all: everyone is committed, there is time for sufficient and clear communication, situations allow for everyone and for time, and proper and sufficient information communicated – which is, once gain, never a given. I made the following comments/observations:
- Paperwork never, ever tells you the things you need to know, either because things are intentionally left out so that the client looks better or because the person filling out the paperwork is so used to the particular behavior/characteristic/way of communication/tics that they don’t think to include them.
- It is extremely important to talk to the caregiver directly with any and all questions, and it is equally important to be both tactful and honest.
- Restraints are last resort only, and if the individual is better left alone and this realization comes while performing a hold, communicate with any and all other staff and (well, we did this with Laurice) count off and run in different directions.
- Bill’s job as advocate is extremely difficult because he must try to be a translator between the parent and the schools. The schools have no way of relating to or even knowing what the parents and caregivers go through on a day to day basis, 24/7/365+. The schools only have a couple hours a day with the individual, 5 days or less a week, less than 45 weeks a year, and thus have very limited and virtually no context for the individual. Likewise, the parents have the onus of having to try to explain the specifics of how they would prefer that their child be treated, how to deal with every little thing in order to be consistent, and try to convey the grind of having a child with a disability. It’s a horrible world of miscommunication and willful negligence of the parents and children and the school systems. I’m pretty sure I was a lot more coherent on the phone with Billy than I was just here, but yeah.
- It is extremely important to thank the caregiver, to thank those who work with the people with disabilities, and just express thanks.
Yesterday was interesting. The last day. And that change, “It’s Friday. It’s Friday. It’s Friday” got all of us through that last day with the campers.
Need to talk about:
- Laurice’s behavior
- Living in Wasie
- Holly and Attie
- Chili from Whole Foods – Wheat bread from Whole Foods – delicious fruit
- Vocal cat - pronounced Oon-tsu I think ...
- Incredible shower
One of the most important lessons that I’ve learned while being at camp is that frustrations result in behaviors. Unless spontaneity is a characteristic of the disability, the individual often does not spontaneously erupt into a behavior. There are always warning signs; there are always patterns; and there is always a way to prevent or lessen the extent of a behavior. Now, whether or not the resources are available to prevent or diminish the severity of a behavior is there is another issue entirely, but there is always something that can be done under ideal circumstances (which do not exist, but you get my point).
Another extremely important lesson that I’ve learned is that trying new things is equally as important and using techniques that are tried and true. For example, Emily and I took five of the ladies of Goldfinch bike riding, and only one had ever been on a bike before. They were three-wheeled bikes, granted, but bikes nonetheless, and they all had an incredible time. Trying new things also applies to working with individuals during every day interactions as well as behaviors – sure, what the caregivers tell you has worked in the past, but don’t be afraid to try something new. For example, with Laurice you had to ignore her and just walk and she would follow you. The more you fussed over her and the more you asked of her vocally, she would just absolutely refuse. But the other day walking back from a meal Emily asked me to take her (bad idea b/c she hates me like noneother), and instead of walking in front of her, I just walked behind her. I think it only worked because she saw Emily go that way and was just following, but it worked to walk behind her, letting her go her own way unless she wanted to go into a building.
We had campout Thursday night and only five ladies were allowed to join us. Emily and I set up the tents after dinner, and it was nice to get away from the cabin. All of Matt’s village was camping out behind Mildred Thompson Hall. Lydia (oxygen machine), Gloria (don’t know why, but she was disappointed that she couldn’t go), Amy (sleep apnea humidifier machine thing), Mary (didn’t want to and so I guess her caregivers allowed her to opt out), and Laurice (swamp creature) did not go with us, but Julie P., Julee C., Livia, Kim, and Karin went with us. Because it was forecast to have isolated thunderstorms on Tuesday, our campout got moved to Thursday. But there were also isolated thunderstorms predicted for Thursday but whatever. So Thursday came and the dance was so much fun – Kimmy chase the guys around, Gloria danced by herself, Karin sat on the edges in a chair, Mary and Livia and Julee P. sat at the table on the end of the basketball courts, Laurice wandered around and finally made it to the table where she hated Sam and loved Emily, Julie walked and danced around by herself, Amy and Lydia danced their socks off, and I went around trying to get all of them involved. At a couple points I sat on the grass between the PC and the courts and rubbed Peter’s head (he’s a camper from Eagle and was one of Derek’s campers). He was adorable, and so cute. He just loved the contact, the pressure, and probably the motion. Ryan was in his usual janitor costume, but then traded to a graduation robe, and later for some sort of jacket and a horrible mullet wig. Sarah told me today during the walk that he had a girlfriend at the beginning of the summer, but I think he and Kara are dating. Eh, whatevs.
After the dance we went back to the cabin, got ready, and finally made it out to the tents by about 9:45pm. While we were getting ready, some campers started their showers (showers number 3!), and during the afternoon Sam had fast-packed a lot of people, which was really cool. Mel, Julee P., Julie C., and I were in one tent, and Karin, Kim, Livia, and Sunny were in the second tent. The tents were book-ended because we only had three staff. We had a great time talking and laughing, but then Josh went over to Sunny’s tent and told us to be quiet because other campers were trying to sleep. Karin got extremely huffy and mad and started yelling because we were whispering, and so we had to calm her down. I (and Mel later agreed with me from her standpoint) had a really, really hard time falling asleep because Julee C. kept biting down, doing her little chomping, teeth-smashing sounds. It was horrible. So loud and so repetitive and so agonizing to listen to. Torture. Absolute torture. I just wanted to tape her jaws closed. Finally somehow I fell asleep (it took a really, really, really long time), but then awoke at about 3:00am to the rain and the occasional misting through the sad, leaky tent. But nothing to be worried about. I kept repeating “Rain, rain, go away, come again another day … please!” in my head and fell back asleep. Unfortunately the rain did not, in fact, go away, and so at about 3:30am Matt and Josh swept through all the tents and told us we had to go back to our cabins. Argh. So we got everyone up, into their shoes, gathered everything, and trudged back to the cabin where we got everyone back into their bunks. Livia ended up sleeping on my sleeping bag, so I just slept with a sheet. I slept horribly – kept waking up every 30 – 45 minutes and thinking, “This is awful – I am getting no sleep and this is possibly one of the worst nights of sleep ever at camp.” Maybe if I had thought happy thoughts I would have slept better, but I doubt it. But yeah. It was horrible. Absolutely awful.
Sarah and I are watching the second Transformer’s film, and I’ve having a hard time with believing and even watching it. It’s just so corny and I really am not liking it right now. Sarah is loving it, though. I’m thoroughly confused. I personally would prefer a comedy or more of a human action film, but whatever.
We stopped for a while and are now surfing the internet for a new iPod for Sarah since hers broke as soon as she got here. We found a refurbished one from the Apple store, purple, 8G, nano for only about $100. She’s pretty intrigued. I’m in love with some BOSE on-ear headphones that run a good $170, and so I am stuck. Which is a big bummer. I looked some up on eBay, but got purchase shy because they were so cheap. I really want some, but I don’t know when I would ever use them, seeing as I like to hear what all is going on around me, and studying with headphones on is always a dangerous option because one might fall asleep.
Now we’re trying to watch Year One, and it’s pretty hilarious so far. I kinda really like the horrible, sick humor that it has. Tee hee hee. But it’s not working. Sadness. So she’s just clicking around. Now we’re watching it. It’s bootleg, but it’s still pretty funny.
“The muscle tribe of danger and excellence” – Jack black’s new tribe name
Sarah’s not enjoying Year One because it’s making fun of the Bible.
In the morning we were all super slow to get up, and get everyone ready. We had a breakfast of cereal and fruit, and then we went back to the cabin for more showers and more packing. I helped Mary take a shower, and then we went for a massage with Jaime the massage therapist. We then made our way over to the gym where some people played with the basketballs and others just sat there. VL Matt plastered a football to my face – I’m lucky my glasses weren’t broken and that I didn’t come out of it with any bruises. But my right thumb is really in pain – I’m hoping it’s just sprained, but whenever I do anything that pushes on the bottom knuckle or tries to move the bottom knuckle I feel a significant amount of pain. It seems to be getting better; like I said, I hope it’s just sprained.
After gym we went to Arts and Crafts where we did collages, beaded bracelets, and other such fun activities. Emily took Laurice back to the cabin so that she could get a suppository. Sunny ran everything back to the house, and the rest of us went to lunch – disgusting pizza – even more disgusting than usual. I just had some salad and two oatmeal cookies. Everyone else ate a lot, though.
On the way back from lunch I was with Mary and realized that I had left my backpack in the dining hall. We went back and she whined, but I gave her more cookies and she was at least amenable. I was pushing Mary back and we had gotten to in front of the Lodge when her walker’s wheels got stuck in the sidewalk and she went over like a soft ton of bricks. Luckily I was able to at least ease her to the ground even if I couldn’t actually keep her upright. She was laughing at me when she was on the ground, and when I asked if she was hurt at all anywhere, and she said no. Oh well. After we got back we did more work and cleaned up for a while. At 2pm everyone except Mary went to the talent show, and Mary sulked in the bathroom being moody because I kept checking on her. Sadness for her. So I just started cleaning, sweeping and mopping the entire back area except for the bathroom and staff room. When they came back at about 3:30pm I had run out of things to clean and so was just sitting with Mary in the front room. Amy had left at about 2:30pm and that was very sad. The other ladies left in bunches, which was pretty amusing. Laurice was the second to last person to leave, and Gloria was the last to leave.
Everyone except Gloria was gone by about 4:15pm, and while Sunny dodged any and all cleaning tasks, Mel and I cleaned the bathrooms and Emily took Laurice to her ride. Eventually I got Sunny to do the floor in the front bathroom, but that’s all that she would do. Emily vacuumed the living room. When we were done we went back to the staff room to pack all of our things, and then we went over to the meeting at about 5pm. The meeting didn’t start until about 5:15pm because Minnesota Loon still had a camper (her caregivers had “forgotten” to come and pick her up), but she came over and sat on the porch with Amy Mitchell while we had the meeting. It was a short meeting with lots of stories and laughter. After the meeting we went back to the cabin to finish packing and move our stuff to our cabins for next week. I’ll be staying in Wasie, and Sunny switched with Brynnan (from Minnesota Loon to Pine) because of Orlando. Sarah Du is stuck in Pine. Yay crappy cabins.
Sunny helped me move my things into Wasie and I helped her move her things into Minnesota Loon. Then Mel went to get her car, I went out to the grass by the front gate to call Billy, Sunny went to check email, and Sarah was still moving her things from Brown Thrasher to Pine. We left about 6:30pm and made it in by about 7:30pm. Sarah’s aunt picked us up from Rainbow Foods where Mel had gone in to get some food for this weekend for herself, and we came to Holly and Attie’s home. I hope I get to take a picture of it – it’s just so cute!
Holly was super nice, and she had chili from Whole Foods ready for us. I took a really long, fabulous shower, and then ate. Very delicious. The three of us sat and stood and wandered about the dining table and talked about lots of things. We laughed quite a bit and were just having a great time. I was in bed and dead asleep by about 10:30pm, which was so nice seeing as I had to get my butt out of bed by 5:30am this morning.
It’s almost 6pm and Sarah is passed out in the recliner across from me. We were watching Burn Notice on the screen. I’m going to go pee and then try to call Mom again. We’re going out to eat at Bucca (some Italian food place I think) tonight, and I’m super excited! I’m gonna eat to store food to last me through next week – no camp food!